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Posted by shugashoop on 2011.11.25 at 23:43
I am an 18 year old woman, who found out last year that i have MRKH syndrome, it was a heartbreaking thing to go through and at the time i felt really alone. Almost as though there was no point with anything any more, but a year on i am now starting to come to terms with it and accept that is the way i am and part of what makes me myself. I am so glad to have found a community with other women who share my experiences and are going through the same as me. It makes me feel less alone and brings a comfort that i have people who actually understand how i feel xxx


jenn1224 at 2011-11-30 02:31 (UTC) (Link)
Welcome! It is a difficult diagnosis, but I promise it gets easier. I was diagnosed when I was 16 and for a while it seemed like a really big deal. I'm now 30, and it's become much less of a big deal as I've gotten older.

Feel free to email me (jenn1224 at livejournal dot com) if you want to talk.
(Anonymous) at 2012-09-23 13:26 (UTC) (Link)
Thank you for this! It gives me such a relief on what to hope for my daughter. She is 16 and currently we are on the "big deal" stage.
You did not say if you are married or with children.

jenn1224 at 2012-09-24 03:24 (UTC) (Link)
I've been married for almost eight years. No kids yet, but my husband and I are in the process of trying to adopt.
np170789 at 2012-12-04 11:56 (UTC) (Link)
hi i have just been diagnosed with mrkh and am desperately trying to find other sufferers to speak to about their experiences if you can give me some advice etc my email is nparker17 at hotmail dot co dot uk thanks in advance
loz45 at 2012-12-29 17:02 (UTC) (Link)
i am sorry to hear your news.i was16 when i found out i couldnt not have children,it was devestating.it did not have this name then or at least i never knew it.i didnt have anyone to talk to,if i had not of met my husband i dont think i would be here now.i am alot older now but it is still hard there are many days i sit and cry and ask myself why me.i have two sisters who have had kids,this makes it a bit harder.i hate myself so much. i would love to talk to other women,but not sure about sitting in a room talking about it.i have always felt alone.there was none of this talking on line years ago,so thats probably why it still hurts.hope you will post back thanks for listening
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