The shocking newsPosted by Shylo Van Gass Wheeler on 2011.12.13 at 21:47
In August we took our 11 year old to the er with the thought of appendicitis. They did an ultrasound and then turned to a CT. The good thing was it wasn't her her appendix but the dr said we needed to see our primary care because they found something unusual in her results. Her uterus was extremely small for her age. Not sure what to think we called her primary dr the next morning and she reviewed the results. The news was shocking, she had a piece of tissue where her uterus was suppose to be. My wonderful dr was on top of it. There was one pediatric gyno in new mexico and she called them, she was out of the country at the time by my dr followed through and talked to her and informed her of the situation. SHe then made an appointment for us and everything. I think we were in shock. We didn't know what to tell our happy, wanting tons of children daughter what her future held. I researched all I could find. During this we were dealing with her eating issues. So she was having a lot to deal with. We waited until a few days before her appointment with the specialist before we told her. A month before we had to tell she had some food alleries and peanut butter was one of them, she doesn't eat meat because of sensory issues so this news to her was beyond comprehension for her, she cried a lot. Because of that reaction we were afraid to tell her the upcoming news. SO my husband and I found the time by chance with her and we told her basically that she would not be able to have kids in her tummy, she would never have a period. WHat else do you tell an 11 year old. As a mother my heart was torn with the loss that she will face as she gets older. I took her to her appointment and the reviewed the ct results but would not do a physical exam because of the shock it would be to her. So we are waiting for a couple of years then she will sedate her to do the physicl exam if needed to not cause any undo stress. But the results was that she has a long trial ahead of her. SHe has no uterus and no vaginal canal. It tears me apart knowing of the pain she will face with the social and the physical aspect. Our goal as parents is to allow her to accept this issue not as a disability but something that makes her unique and special. It will become a part of her daily life. There is not a lot of info for kids this young being diagnoised, so I am sure there are parents out there dealing with this issue. I am starting a blog to journal and follow our lives as we deal with this for the many years to come. Right now my husband and I feel like we are floating along a rapid river without a life jacket. We have our faith and we have each other as we step forward. Thanks for listening, it is hard to talk to "normal" people about this whose lives have not been shaken by this issue.