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Re-opening the can of worms

Posted by jeneferwong on 2012.05.08 at 21:17
I finally found the name to this abnormality I am living with for the past 30 years. Hello MRKH, nice to meet you. With the correct name, it gave me more insight to closer to being a normal person. I am actually "excited" with the options available after leaving this for 12 years. I was diagnosed at the age of 18. The same "once upon a time" story like most of you, walking out of the clinic with an answer to explain the absence of menstruation = born without an uterus and vaginal canal. 

I lived in a tiny country called Singapore, so far there isn't a doctor available whom perform vaginal reconstruction. My options are 1. Do nothing 2. Seek medical options overseas such as USA or Europe.

I would need your help to share your experiences or kind advise if you have done either 
Laparoscopic Vecchietti technique or Laparoscopic Davydov technique. I found this clinic in Atalanta http://www.neovaginasurgeons.com/, any one heard of them? 

Looking forward to your comments and I am giving the dilators kit a shot first as of now till I have gather enough information to plan my next move.

Yours truly,
Jen

Comments:


(Anonymous) at 2012-05-18 18:11 (UTC) (Link)
Jen,
I would suggest sticking with the dialators for now. Some MRKH women have a vaginal "dimple" that can be stretched over time to a length that will accomodate your partner while having intercourse. Psychologically, it may also make you "feel" a little more like a "normal" woman. I wouldn't go the surgery route unless it was absolutely necessary. Think of who you are really doing this surgery for. Is it for you? No one says that being a little different "down there" is wrong. I was diagnosed with MRKH at age 16. I am now 36. I dialated naturally through sexual intercourse over the years. I can fully accomodate my partner's penis without difficulty.
Like many other women on this site, I've gone through all the feelings of devastation, low self-esteem, depression, anger, self-pity, etc. It's something that becomes very apparent when you hit about the age where you "should" be having a baby. You see all your friends do it. And then you think, "why not me?", "What have I done to deserve this?" It's really not fair, but there is very little in life that IS fair. Especially when all you want to do is provide a child with love and a nurturing home. Then there is always the thought of..."what man is going to love me like this". Obviously the answer to that is..."the right man". And I have found mine. And we are currently going through the adoption process, while at the same time looking at surrogacy. Yes, having a biological child is possible as MRKH women have fully-functioning ovaries. They may be higher up in the abdomen, like on either side of your belly-button (like mine are), but there they are just the same. It can be a very expensive endeavor, but if you can find a surrogate, it is possible! I still struggle with the fact that I will never know what it's like to carry a baby inside me. And that's really sad. BUT...I can still be a parent! And I think I'm ok with that...
Good luck Jen with whatever route you decide to go...let me know if you need any more information about MRKH. I have done a fair bit of research (of what there is out there, anyway)...
(Anonymous) at 2012-05-22 23:35 (UTC) (Link)
I have MRKH. I was diagnosed at the age of 16 and had a great doctor at the Children's Hospital in Boston. His name is Dr. Laufer and he and his team are excellent. Before you consider surgery options, you should also think about dilation. It is a nonsurgical procedure in which you use dilators to stretch out and create a vagina. Also you should check out the MRKH.org website for more information about the syndrome.

Good luck with this and know that there is hope. This can be such a difficult condition to deal with. There are other women just like us and it is helped me a lot to read their blogs and stories.
(Anonymous) at 2012-06-25 09:09 (UTC) (Link)
Have you considered getting this done in India?
kiran1958 at 2012-06-25 09:40 (UTC) (Link)
Hi,
Nothing to worry....it works...however you ask your doctor for an MRI instead of Laproscopy.

Vaginal canal construction is no big deal and you just need a good doc....you will be able to lead an absolutely normal married life after this ...howeever pls inform your partner about your situation.

Also if you have functional ovaries you will be able to also have children via surrogacy.

Cheers!!!!
(Anonymous) at 2012-07-02 12:14 (UTC) (Link)
HI my name is Laura and I am 29 years old. i have knownabout mrkh since I was 17. i chose to use the dialation technique instead of surgery. You MUST be VERY diligent and do it as often as possible, be patient also. It took me a couple of years, but I have a FULLY functional vagina now.I am married and have a totally normal and satisfying sex life for both my husband and myself. I would say that I have achieved about an 8 inch depth when penetrated. So, be encouraged you can achieve a fully funtional vagina as well.
(Anonymous) at 2012-07-05 18:07 (UTC) (Link)
How are the dialators working for you ? I have to start using them within the next month and I'm a little nervous about it
(Anonymous) at 2012-08-19 16:35 (UTC) (Link)
Hey Jen i just found this site so i may be late but have you decided on what you want to do?
(Anonymous) at 2012-09-10 04:22 (UTC) (Link)
Contact me:
charmingchick23@yahoo.com

I have alot of personal experience with M.R.K.H. and I'd be more than glad to share my experiences. E-mail me

(Anonymous) at 2012-09-13 15:33 (UTC) (Link)
I was diagnosed with MRKH syndrom in 2008. I recently had the Vecchietti. I had an amazing docotr! He is stationsed out of STL. You really need to check into it. It was an amazing experiance and he was able to give me a lot of ansewers, like why I was born witht this condition. He also explained the proceedures to where i understood everything and even showed me videos. You should check him out! His name is impossible to spell! Its DR veronikis.
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